Saturday, May 16, 2009

2009 Cincinnati Walk Now for Autism

The walk went very well today. We had 5 people inquire about buying the puzzle piece purses. We may have also found a building for the autism resource center. I had a table at the walk as well and gave away over 15 copies of the resource list. I wish I could've given more, but that's all I was able to bring with me. I gave a lot of people my home e-mail address so I can e-mail them the links to Autism Speaks First 100 Days Kit, as well as the Kentucky Family Guide to Autism Spectrum Disorders. I even received a request asking for information about support groups. I was so happy to be able to say that we have one! No parent should be going through this struggle alone. Whether you've gotten a diagnosis or waiting for one, you shouldn;t have to go through it alone. We're here to help, and will do what we can to find the resources and support you need.

Monday, May 11, 2009

May Meeting - Summary

I think the meeting tonight went very well. There was a total of 7 in attendance. Connie and I provided some handouts, to include the completed resource list that I typed up last night. Nancy Elmore came to the meeting, and she offered to donate 25% of the proceeds of her Premier jewelry sales to my autism walk team: Shelby's Proud Puppies. Though we all have very different personalities, we all share a common thread, and that is our children. We've all faced the same struggles and made it through ok, and that's what helps.

Jessika Vance-Morgan and Autism Research

The following is a message I received from Jessika:

Hello,

A couple of weeks ago I sent out an e-mail explaining my current research endeavors at Eastern Kentucky University. This reach is focused on using the NEPSY-II, a neuropsychological test that assesses executive functioning, senorimotor functioning, social perception, and visuospatial processing with children with Autism Spectrum Disorders. I would like to examine the unique profile children with High Functioning Autism and Asperger's Syndrome in the Executive Functioning and Social Functioning aspects of this neuropsychological battery.

In order to have my research approved by the IRB, I must have an e-mail from various organizations that support Autism research that they will forward my information on to their e-mail lists, web sites, and discussion boards. If you feel that this research is one that you can support, please e-mail me back and let me know.

Your support of research and advocacy of Autism Spectrum Disorders is admired and appreciated. Thank you for your time.
Jessika Vance-Morgan

Academic Coach
Office of Services for Individuals with Disabilities
Office: 859-622-2933
Mobile: 859-588-4116
jessika_vancemorg@eku.edu

Do all the good you can, by all the means you can, in all the ways you can, in all the places you can, at all the times you can, to all the people you can, as long as ever you can.-John Wesley

Saturday, May 9, 2009

The 5 Types of Autism Spectrum Disorders - According to Kentucky's Family Guide to Autism Spectrum Disorders

1) Autism
2) Asperger Syndrome
3) Pervasive developmental disorder - not otherwise specified (PDD-NOS)
4) Rett Syndrome
5) Childhood disintegrative disorder

The word "autism" was first used in 1911. It wasn't until the 1960's that researchers began to put autism in its own category. In 1994, DSM-IV was introduced to clarify the characteristics and criteria needed for an autism diagnosis. Autism spectrum disorders affect 3 main areas: communication, socialization, and behavior. Others areas of development, such as fine motor skills and sensory processing, may also be affected.